fanconi.org.uk Report : Visit Site

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home fanconi anaemia living with fa uk liaison and research coordinator support available help with medical terms about us research observational study for long term health implications previous fanconi hope-sponsored research international fa gene therapy working group links for clinicians and researchers publications and directory news contact us get involved join our community fundraising and donating we are fanconi hope we are a registered national charitable trust set up by parents of fanconi anaemia (fa) affected children and clinicians with an interest in fa – a rare, life-limiting genetic disorder. we are fanconi hope we are a registered national charitable trust set up by parents of fanconi anaemia (fa) affected children and clinicians with an interest in fa. fanconi anaemia (fa) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life. join the uk fanconi anaemia registry help us uncover and document the long-term health implications of fanconi anaemia by regularly interacting with our experts. they can then generate the information that is needed to ensure best practice care for every fa patient across the uk. join make a difference our work is made possible through the generous donations and funds raised by our supporters, fa families, their friends and relatives across the uk. help us further research into this genetic condition and support families and individuals affected by fanconi anaemia. donate latest news an update from the new fanconi hope chairman, bob dalgleish june 24, 2018 the new uk fanconi anaemia registry – your involvement needed! may 18, 2018 good news about the new uk fa registry! february 21, 2018 more news sign-up for updates join our mailing list and we’ll keep you updated with our work, special events and ways in which you can make a difference. your email will not be shared. connect with us twitter facebook instagram 10 years it’s hard to believe but it’s now 10 years since fanconi hope was formed, with the belief that we could have a big impact on many lives. our work although the charity is small and staffed by volunteers in their spare time, fanconi hope has been able to make significant progress in a number of areas: raising awareness bringing families together promoting research bringing clinicians together to share best practice £ 275,000 + raised for research and family support £ 164,000 + in sponsored research projects fanconi hope is currently fundraising to prolong a 3 year study into the long term effects of fanconi anaemia which is being led by manchester university and wholly funded by fanconi hope. this study funds a uk fa coordinator, beth lee, who will create and maintain a patient-led uk national patient registry in order to improve patient care and facilitate research. the coordinator acts as a point of contact for patients & families, and clinicians & researchers. please help us achieve this with donations large or small. join the uk fa register to all patients and families in the uk living with fa , find out more about the long term health implications of fanconi anaemia. "i believe that we have already shown that this is possible but as the parent of a child with fa and as chairman of fanconi hope i will not rest whilst there is the opportunity for improved treatment for all and ultimately, a cure." ~ bob dalgleish, chairman (fanconi hope) fanconi hope is a registered national charitable trust set up by parents of fanconi anaemia (fa) affected children and clinicians with an interest in fa. in 2008 three parents of affected children, thomas carroll, richard kawalek and bob dalgleish started the fanconi hope charity to fund research into this disease, to help engender consistent best practice treatment across the uk and to provide much-needed support to affected families through the provision of information and improved family contact. © 2008-2018 fanconi hope charitable trust. registered charity number 1126894 . navigate home fanconi anaemia living with fa about us research get involved news contact us legals antispam cookie policy privacy policy connect by post: fanconi hope po box 905 southsea, hants po1 9jg by email: [email protected] by phone: 0300 330 1410 quick contact form this website uses cookies to improve your experience but you can opt-out if you wish. accept reject read more privacy & cookies policy

URL analysis for fanconi.org.uk

apps.charitycommission.gov.uk

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain name:
fanconi.org.uk

Registrant:
robert dalgleish

Registrant type:
Other UK Entity (e.g. clubs, associations, many universities)

Registrant's address:
16 andover road
southsea
PO4 9QG
United Kingdom

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 26-Nov-2013

Registrar:
LCN.com Ltd [Tag = LCN]
URL: http://www.lcn.com

Relevant dates:
Registered on: 06-Mar-2008
Expiry date: 06-Mar-2019
Last updated: 07-Mar-2014

Registration status:
Registered until expiry date.

Name servers:
ns1.svr18-speedyservers.com
ns2.svr18-speedyservers.com

WHOIS lookup made at 11:13:12 16-Aug-2017

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2017.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS fanconi.org.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION robert dalgleish

TYPE
Other UK Entity (e.g. clubs, associations, many universities)

ADDRESS
16 andover road
southsea
PO4 9QG
United Kingdom
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 26-Nov-2013

DOMAIN

  SPONSOR LCN.com Ltd [Tag = LCN]

  CREATED 2008-03-06

  CHANGED 2014-03-07

STATUS
Registered until expiry date.

NSERVER

  NS1.SVR18-SPEEDYSERVERS.COM 193.189.74.254

  NS2.SVR18-SPEEDYSERVERS.COM 195.8.196.254

  NAME fanconi.org.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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